charlotte’s web cbd oil for children

Charlotte's Web: the families using medical marijuana to help their kids

Kim and Chris Clark had tried almost every medical option available for their 10-year old son Caden, who has severe epilepsy. Then they discovered medical marijuana.

Caden Clark has Lennox-Gastaut Syndrome, which gives him between 10 and 70 seizures a day. On bad days he would have over 100.

“We had really started getting afraid, because he had reached what they call expiration age,” said Kim Clark. “These children tend to get to this point and they just seize so much, you know, it gets critical.”

The Clarks have tried over 20 different types of medicine, a brain lobectomy and extreme diets to alleviate Caden’s seizures – with varying degrees of success and side effects.

“I hesitate with the word ‘miracle’, because it’s not that easy. We’re experiencing things we never would have without it, but we’re still dealing with the delicate balance of his brain,” Kim said.

For Chris Clark, medical marijuana was a last resort. Chris has worked for the Atlanta police department for 26 years, and is currently in charge of monitoring Atlanta’s drug evidence.

“I was real nervous about what my peers would think about me doing this,” he said. “I finally came to the conclusion that if there is a chance that this product could help my child, then you’ve got to do it.”

In December 2013, the Clarks moved to Colorado Springs to legally obtain a strain of marijuana called Charlotte’s Web. Chris stayed behind in Atlanta for work, and visits the rest of his family whenever he can.

The move appears to have paid off. By the Clarks’ estimate, Caden has had a significant reduction in seizures. “We had never had a seizure free day ever so to go four or five days (without a seizure) was mind-blowing,” Kim Clark said.

‘It was their last option’

The Stanley brothers first created Charlotte’s Web five years ago to explore the medical benefits of marijuana for people with cancer. When they were first approached by the Figi family, who wanted to give the drug to their young daughter Charlotte, who suffered from severe epilepsy, the brothers were cautious.

“All I saw was us in orange jumpsuits at the time. But it was their last option,” Jesse Stanley said.

More than 400 families are using Charlotte’s Web to treat their children, and thousands more are on the waiting list. To meet the demand, the Stanley brothers are expanding their operation, and hope to get everyone in Colorado off the list by the end of 2014.

Charlotte’s Web was once known as ‘Hippie’s Disappointment’ because it doesn’t get its users high. The drug has higher amounts of cannabidiol (CBD) and lower doses of THC, which is the psychoactive part of the plant, compared to recreational marijuana.

There is no conclusive evidence why CBD may limit seizure activity, because marijuana is a schedule 1 drug, which the DEA deems to have no medical use, and scientific research on marijuana is still in its infancy.

Dr Orrin Devinsky, who leads the NYU Epilepsy Center, is one of handful of doctors who has started testing the effects of CBD on children. He must store the drug in a 1,200lb safe at his lab due to federal regulations.

“It’s common for people hearing incredibly wonderful anecdotal stories to feel like they know the answer, and no one should feel like today, based on the data, that anyone has any of the answers about safety or efficacy,” Dr Devinsky said.

At the Children’s Hospital Colorado, doctors have reported cases of children who have gotten worse on Charlotte’s Web, and, in some cases, gone into intensive care units. Kim Clark says that dozens of families have had to give up the Charlotte’s Web treatment and move back home because it was either too expensive or didn’t work for their children.

For now, the evolving legal status of marijuana will mostly keep doctors and families guessing.

Charlotte’s Web cannabis treatment oil for children held at Canadian border

A Summerland family is desperate to access their shipment of Charlotte’s Web, a medical marijuana oil made especially for children, but it has been held up at customs at the Canadian border.

Last year, three-year-old Kyla Williams of Summerland had up to 300 seizures a day because of her epilepsy. Now, after taking cannabis oil imported from Colorado, her seizures have stopped all together, and she has stopped taking all other pharmaceutical drugs. Vancouver Sun

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A Summerland family is desperate to access their shipment of Charlotte’s Web, a medical marijuana oil made especially for children, but it has been held up at customs at the Canadian border.

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Elaine Nuessler, who advocates for the use of cannabis oil treatments for kids with seizures, is terrified that her granddaughter, four-year-old Kyla Williams, will suffer hundreds of seizures a day if she doesn’t get the c annabidiol ( CBD) oil, which the family has been importing for more than a year.

Charlotte’s Web cannabis treatment oil for children held at Canadian border Back to video

The little girl has become the poster child in B.C. for children who have shown remarkable recovery using Charlotte’s Web, a cannabis oil low in THC (the psychoactive compound) but high in CBD, the non-psychoactive component found to help with some types of seizures. The organic product is manufactured in Colorado as a dietary supplement and has only 0.3 per cent THC.

Kyla went from more than 300 seizures a day to virtually none, and relies solely on Charlotte’s Web instead of pharmaceutical drugs to treat her seizures, but the family’s shipment has been flagged at the border.

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“People are writing to me and they are freaking out. It is absolutely ludicrous.”

Reached at home in Summerland on Wednesday, Nuessler was overcome with emotion, as she described how worried families with young epileptic children are. She said several people have contacted her to say that their shipments have also been held at the border.

She believes that border officials have not done proper testing, and are holding it because there are small amounts of THC. She said it is so frustrating because Canadians have the right to legal medical marijuana.

She said although she has received dozens of offers from medical marijuana producers in Canada, she believes there is no other product that is as consistent in quality and as low in THC for children as Charlotte’s Web.

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There are some medical marijuana products in Canada designed for children, but Nuessler said it is very problematic for families to start “experimenting” again with a new product because they don’t know how their child will respond, and they have dealt with so many inconsistent products in the past.

For example, some could be higher in THC than advertised, which could cause children to space out.

“These children cannot be without this oil. It’s a terrible situation. Why is medical cannabis still such a threat?” she said. “I just wish the border officials could see the faces of the children they are affecting,” she said, her voice shaking.

“Charlotte’s Web has three years of expertise in making children’s CBD oil. This is a hybrid that is so great for kids. It is clean and organic,” added Nuessler, who has spent months in Colorado researching the product.

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Kathy Liu, a spokeswoman for the Canada Border Service Agency, said under Canada law, “it is illegal to import or export drugs, including marijuana and its derivatives, whether medicinal or not.”

The Canada Border Services Agency is responsible for enforcing over 90 acts of legislation, including the Customs Act and Criminal Code, Liu added.

She has yet to respond to questions about how many shipments of Charlotte’s Web have been stopped at the border, and how the product is being tested to determine if it is an illegal drug.

Parents say “Charlotte’s Web” pot helps kids suffering severe seizures

COLORADO SPRINGS, Colo. – Legislation to legalize a controversial treatment for children with severe epilepsy advanced Thursday in Utah, Georgia and South Carolina.

The treatment uses oil derived from marijuana. For not, it is only available in Colorado.

Aaron Klepinger considers this a miracle cure: the daily dose of liquid marijuana extract, known as Charlotte’s Web, given to his 8-year-old son, Hunter.

The Klepingers believe it controls seizes so severe they caused brain damage. Traditional epilepsy drugs were ineffective for Hunter. The Klepingers say that the extract has reduced the frequency of seizures from as many as 100 a day to as few as two a week.

“When he was on pharmaceuticals, he was screaming all the time or sleeping all the time or having more seizures. He’s more alert and more happy than he used to be,” said Dawn Klepinger, Hunter’s mother.

Aaron Klepinger says a daily dose of liquid marijuana extract helps prevent his son, Hunter, from suffering severe seizures. CBS News The Klepingers moved to Colorado, where marijuana is allowed for both recreational and medical use, from Georgia, where any use of marijuana is illegal.

“I feel horrible that a child’s zip code is what determines their ability to get medicine that could potentially save their lives,” Aaron Klepinger said.

Asked whether he believes the liquid marijuana extract can save Hunter’s life, the father replied: “Absolutely. I think it can.”

Legislators in 12 states are considering proposals to allow a version of Charlotte’s Web to produced or sold legally.

The extract has a very low dose of THC, the chemical in marijuana that gives people a high. Parents believe other chemicals in the extract reduce the seizures. But there is no scientific study to prove the effectiveness and safety of Charlotte’s Web to treat epilepsy.

“I think we have real reason to be concerned,” said Dr. Amy Brooks-Kayal, first vice president of the American Epilepsy Society. She worries that parents are sailing into uncharted waters.

“We do know from basic science studies that marijuana derivatives can completely stop the cellular mechanism for learning and memory. And right now I don’t know the benefits, the likelihood that it is going to help. And I know nothing about the risks,” she said.

There are about 200 patients in Colorado using the extract, half of whom moved from out of state to use it legally.

Dangerous or not, they feel it the best hope for their own miracle against epilepsy.